View Full Version : My Alopecia Is So Frustrating

05-10-2007, 04:31 PM
I am so fed up with my alopecia that I am even considering going back if you know what I mean just to get a nice smooth ponytail.

I just do not know what to do anymore. I know I need to get to a doctor but my hormones are imbalanced hence the hairloss due to PCOS.

I have to find a way to reverse the hair loss. Boy this is not easy. Perhaps I will start eating raw or something I am not sure.

05-10-2007, 04:41 PM
Ai, I am sorry about your alopecia. It is absolutely frustrating. How do you treat it?

I was once suffering from it myself and I don't believe relaxing is helping. Actually when I stopped my spots grew back.

05-10-2007, 04:48 PM
When I stopped relaxing my spots grew back so I don't think that going back would solve your problem. Give it some time, remember to keep the area moisturized and massaged. I would also suggest going to see a dermatologist.

05-10-2007, 04:52 PM
Honestly I am not treating it at all.

Now I see that my laziness is part of the problem.

I am now on a mission to better myself. More exercising better eating etc.

It is just awkward trying to find styles when all I can do is pull my hair back to cover the crown of my head.

When I wear two-strand twists from a certain angle you can see the bald spot. :brickwall:

05-11-2007, 01:08 PM
I completely feel you, my alopecia is frustrating me so much. But please do not stress that may be the big factor of your alopecia. But you have to some how treat it. I just finished getting my first set of shots and I am going to start using Dr. Miracle along with ACV washes. We are all here to support one another so please don't go back to the dark side. Be strong... :D

05-11-2007, 06:16 PM
:) I appreciate everyones advice :)

I am definitely going to see a dermatologist as well as a endocrinologist. I have PCOS(Polycystic Ovarian Syndrome). This causes a higher level of testtosterone in some women. This leads to male pattern baldness.

I pray that it is reversible I am not quite sure.

I just wish that this wasn't happening. I must however get cntrol and do what I can to stop it from getting worse.

05-12-2007, 07:34 PM
Hi there Kalia,
I have PCOS also and unfortunately it is not reversible. Even if the cystic ovaries were removed, the symptoms remain. Once I started a course of metformin, I started sleeping better and I think it did help to regrow my initial hair loss. I stopped seeing my endo after awhile because although he helped me, he was an *** and I didn't see the need to continue seeing someone with such bad manners.

It can be frustrating, but there are support groups out there (www.soulcysters.net). The best advice I have for you is to do just what you're doing. See your endo and they will be able to help you. Finding one that is familiar with PCOS is best.

05-13-2007, 01:12 AM
I also have PCOS, and am experiencing severe shedding and scalp burning sensations (which, as I hear, means my hair is about to fall out in the same place I feel the sensation – my temple and hairline on my right side :( ). I am extremely depressed over this. I started doing the sulfur treatment about 2wks ago, which I thought was working, until I looked in the mirror today (trying to practice 2-strand twist) only to discover that I could see right through my hair onto my scalp :shocker: :crying:

I am going to see a naturopathic doctor from my church. Hopefully, he can help me before I run out to a medical doctor (I just DON'T trust them...they never understand!). All I can do is pray. As of now, my spirits are at an all time low. It seems that every story I read (about PCOS and hair loss) searching for a trickle of hope is almost always let down by disappointment, failed expectations, and unwelcome realizations. I just want my hair back!!!! I’m sorry ya’ll. Please excuse me. I am deeply saddened over this. Words can’t even begin to describe. But, I’m sure you all know what I’m feeling, unfortunately, all too familiar. I’ll pray for you all too. Only God can eradicate this devil!

05-13-2007, 03:48 PM
Coilygurl-Thanks so much for your response. I am a member of soulcysters.net. Great group of women! I am currently taking Metformin as well. The Metformin doesn't seem to be changing my hair one way or the other. My next goal is to see an endocrinologist or a herbal specialist to figure out how to lower my testosterone. I will keep you posted.

Tameshia-Thank you for your response too. I can totally relate. I used to have a head full of hair. During my creamy crack days I couldn't wait to get my doobee to peep my "v" on my back ;)

I am trying to stay encouraged daily altough it is not easy. I clearly believe that if I would committ to exercising and eating right things would change for the better. I just procrastinate which is only leading to more hairloss.

Stay encouraged sweetie. As I tell myself it could be worse. I could have a terminal illness with only weeks to live. Please keep in touch and let me know how the visit goes.
Remember stress and worrying also brings on hormonal fluctuations that can lead to hairloss.

PM me anytime believe me I can relate and I am here for you.

05-14-2007, 10:56 AM
Try Moes home made recipe. It's easy natural and it seems to work for many others:

http://www.nappturality.com/forum/index.ph...topic=95583&hl= (http://www.nappturality.com/forum/index.php?showtopic=95583&hl=)